Sunday, April 11, 2010

baby steps are OK, they are still steps forward

I am very impatient today for whatever reason, I think the lack of adequate sleep is getting to me. When I got the the hospital today the nurse told me they were starting Tom back on Precedex to help with his agitation. So, now we are back to 3 meds to keep him comfortable and quiet. I expressed my frustration with Scott the PA in charge of him today that I feel as though we are going around in circles. He was very honest and said yes we are. They just can't find a reason as to why Tom comes out of the sedation in such a wild manner and the problem is that when he does that he drops his oxygen sats into the 70's (NOT GOOD) and it starts the cycle all over again. More sedation, up the vent settings, and so on. Today they have not been able to trial CPAP again because his chest x-ray wasn't looking to good and he is very secretional. The thing to keep in mind is that Tom is not getting worse...he just isn't getting any better either in the mental status/respiratory status departments. Although, his electrolytes are stabilizing and his kidney function is continuing to improve. Tomorrow will bring another dressing change. The wound and infection remain under control which is a huge accomplishment.

I am feeling much better after a visit with Mark and Kenny today. They certainly lifted my spirits. Thanks so much guys! I am looking forward to spending the late afternoon with the girls and Trot. I think a trip to the park is in order for some fresh air, sunshine, and laughter.

I will close for now with this thought...slow and steady wins the race.


  1. I know he can do it. Like you said he's just sleeping til the sleeping's done!

  2. I'm thinking about you every day Cheryl.


  3. Cheryl--You are AMAZING and I LOVE YOU! I am thinking about you always and will continue to pray. Never underestimate the power of prayer. Thank you so much for your continuous updates.
    Sending tons of love and hugs your way,

  4. Cheryl--Just saw all the updates on Tom. I will keep him and you & your family in my prayers. Sounds like you are staying strong and Tom is lucky to have you at his side. Keep us updated.

  5. Cheryl -
    Like you said - remember they are baby steps forward... stay positive and keep praying. I will keep you, Tom and the girls in my prayers. thank you for the updates

  6. Cheryl,
    You, Tom, and your entire family continue to be in my thoughts and prayers... Keep faith in the power of positive thinking...
    Tracey (Fix) O'Neill

  7. I'm continuing to keep you all in my thoughts and prayers. Stay strong and continue to be Tom's biggest advocate. Love you. XOXO

  8. Cheryl,
    Corny as it may seem, I dedicated my yoga practice to Tom tonight, sending healing vibes with all my might. I'm thinking of you all the time. Much love to you, Tom and your girls.

  9. Hi Cheryl
    Michelle here from Wales. Found out from Jane that Tom unwell. Would like to pass on our thoughts and positive vibes to you all at this time. Love Michelle and Mark. xxx

  10. Hi Cheryl,
    My thoughts are with you and your family. Tom is a tough cookie and so are you!
    -Kristin Casasanto

  11. Cheryl-
    Thinking of you and your family. You will get through this! Hugs, Kisses, and Prayers! Hang in there. Kristine Williams Girardin

  12. Cheryl, Mimi Royston from Assumption. I would like to bake a macaroni and cheese casserole for you and the girls. How can I get that to you?

    Tom, you and the girls are in my prayers!
    Please call me at 508-767-7167 so I can arrange to deliver some food for you.

    Thanks! Mimi